2025...

I have found it extremely difficult to get back to writting this blog. I have had so many ups and downs over the last few months. I had my first Oncology appointment on the 9th December and all my blood works looked good. Had a CT scan end of February and saw Professor Davies in March, and all was good news. My CT scan came back clear, but I am still in a lot of pain, so he has referred me to a Rheumatologist and to have a scan on my left hip and left knee which I had done last year, which had shown up as marginal zone lymphoma, so we need to make sure all is well with that. I have since seen a Dr about managing my pain with medical cannabis. He is convinced that I have fibromyalgia https://www.mayoclinic.org/diseases-conditions/fibromyalgia/symptoms-causes/syc-20354780 and suggested I tried medical cannabis to help with the pain. I have been taking this for a few weeks now, and if nothing else, I sleep like a baby. It has help in many ways, and although its not taken the pain away, it has dulled it. I struggle so much with peripheral neuropathy, which is a side effect of the chemo drugs. Some days the pain in my feet are so bad that just walking is incredibly difficult. Its a burning pain that is just constant and the burning, numbness in my hands are so bad in the morning and ease off slowly as the day goes on, but the numbness is always there. I am hoping this will disapate over time. https://lymphoma-action.org.uk/about-lymphoma-side-effects-treatment/peripheral-neuropathy

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